The needs assessment phase was based upon formal stakeholder input.
An outside contractor conducted focus groups and included UDOH
managers from programs that currently have child health data
sets; parents of children with special health care needs; and
representatives from family and other community advocacy groups.
During the needs assessment three major findings surfaced: 1)
Parents and families have a strong need to have their voices heard
throughout the data integration process, and parents have concerns
that mishandling of data may negatively impact insurance costs
and healthcare access; 2) UDOH must make participation by providers
very easy and attractive if they are to share data; and 3) program
staff was interested and supportive, but desired training and support.
Parent input was sought early on, stemming from ongoing relationships
between the Department and community groups, and will continue
throughout the process. Program business needs are constantly
being addressed with the stakeholders. More specific input
from the medical home community will be sought closer to the
time when CHARM becomes web enabled in order to allow for their
access. The needs assessment phase produced the information
on which the planning phase was built.
Click here to view a copy of
the CHARM Needs Assessment in PDF format